Thursday, September 26, 2013

Something needs to change.

I have been avoiding posting for quite some time. I really don't have anything positive to say. Whatever adhesions/female problems related to my previous ENDO that have been going on have really taken a toll on me. It is exhausting both physically and mentally. I know I don't have problems as severe as some people do. But my entire life has been effected by this. I feel so sad that I am not able to do normal things. That I can't exercise and I feel so out of shape. I am so depressed that I am not able to do fun things with my family. A good day is getting out of the house for a few hours and NOT feeling like the pain is going to kill me. I have pain medication and sometimes it works. Lately most of the time it just takes the edge off and I have to lay under my heating pad savior. I can't keep this face on for much longer. I am jealous and getting bitter that my life is confined to my house. Then I feel guilty that my family is so kind to me that they want to adjust plans to try and accommodate me. Especially when most of the time I ruin all outings. I don't want to fall down this hole, but I don't know how much longer I can hang on. I just really need something to give...

Wednesday, September 4, 2013

The post I don't want to post

I feel awful today. Not much different than any other day that this stupid pain resurfaces. But the pain I feel pales in comparison to the sheer exhaustion I feel when dealing with people. People who do not understand the situation (former endometriosis - possibly current - almost certainly adhesions. Really don't know what to say, some have suggestions, some know some one who knows someone who had something like that, Did I try to get a hysterectomy because that helps... Sometimes it does not make sense to people how I "look" perfectly fine one day and am in the ER the next. Well, it does not make sense to me either but it does happen! I can spend weeks working out with out incident, and then BAM end up on the floor crying....or hurt so damn bad for so long, the most that I can do is just lay in bed with a heating pad because I am so exhausted. I have really made an effort to expand my routine. Looked for new activities that may make me part of the population, but they are difficult to keep up with. I really do want so much more- I hate feeling like there is something "wrong" with me. Physically, yep, there is. I can't show you a cast or a kitchen knife stuck in my skull, but trust me, it is there. Sadly, when most people try and make me talk to me about it or make me feel better, it just makes everything worse. I feel even more isolated and alone than I did before someone tried to cheer me up. Sometimes I just want to take a vacation away from everything lay on an island someplace and NOT talk about ANYTHING TO ANYONE. I know, I know, WHOMP-WHOMP....Things could be SO MUCH WORSE......But I just needed to vent

Tuesday, August 13, 2013

Yo, Ho. HO!

Today has been a particularly crappy pain day. I can feel my insides screaming. I have had to take so much pain medication today that I am dosing on and off. My teeth feel loose from grinding them when I feel a wave of pain coming on. I wish I could be sarcastic and come up with some witty lines about life and this condition...but right now, I can't even get up and wash my face. I will be so glad when I have no pain.

Monday, August 5, 2013

Moving on, Growing up, Empty nest

The last few weeks have been worthy of so many clich├ęs I do not even know where to begin. I am so incredibly proud and happy that my oldest is in her first apartment in college. I am grateful that she is only an hour away and that she prepared herself to live on her own. She is fantastic and will do wonderfully, I have no doubt. I on the other hand am a complete nut job. I have cried non-stop and can't wait to see her again. This is rough. Thank GOODNESS, my son is staying at home for college right now. If he follows suit, I will have him for 2 more years. Though I think it is likely to only be a year before he ventures out on his own. I have an empty room that will be filled with things eventually. I am sure this kind of empty feeling is going to go away too. It will be filled with pride-probably still a bit of worry. But I am sure I will move on from this with an appreciation for my birds flying. But I will allow myself some tears now and again. The transition to my next chapter is going to be interesting- Stay tuned!

Monday, July 29, 2013

Priorities

I can be a friend to you if we disagree about religion and politics. If we are on opposite sides of a Real Housewives fight, YOU ARE DEAD TO ME! Maybe I need to pick up a book?!

Friday, July 19, 2013

Backhanded Compliment or Medical Observation?

I went to my PM doctor (that is pain management for all of you non-chronic pain sufferers) for a check up and my monthly piss test for refills. Still not an addict or rich from selling pills. Still having the life sucked out of me from my pelvis!!! While getting my vitals the nurse says to me- “You don’t look like you weigh that much!” WOW! REALLY?!!! That is something you said? Like, OUTLOUD? Surprised a bit by this statement I said, “Thanks, I think.”……..”I guess I just carry it well???” To which she responds, “You must be big boned.” Ummmmm- Is that a clinical diagnosis that I can get in writing? I can carry it with me when I have to hunt down an XL or when I go to the beach. LOOK! I CAN WEAR THIS BECAUSE I AM BIG BONED! I have a note from the doctor and everything! Look, I get that you are a thin person and probably don’t have the foggiest idea of what it feels like to step on a scale and have someone standing behind you. If I said- “You look so PRETTY in this picture! You must just photograph well!” I am certain that would leave you wondering if I meant you look hideous in person. If you are someone that is NOT comfortable with the varied appearance of the human body, perhaps you should NOT be in the medical field. I don’t need you to reassure me that I am not actually Jabba-the-hut. Maybe no comment should be the policy here.

I really do not have a thin skin. When the same nurse asked me if I was trying to lose weight, I did not flip shit. She continued to say I was down 6 pounds from last month. Curious, I did not notice. Nice to know! The reality of the situation is something she should be familiar with: Pain = NO EXERCISE! I have not been able to move without pain for years. Pain Management, ALLOWS ME TO MANAGE THE PAIN. Which means, I am more able to exercise. Which means I probably am going to lose weight! (some, anyway!)

Most of the time I think I am just like any woman. I think we all have some insecure feelings about our bodies, no matter what our shape. That I am fine with. Feeling like I can work at something to make me feel better-look better. What I am not fine with is thinking I am some sort of freak show because a nurse says…”You’re not fat, You’re just big boned. “

You know what you can do with that big bone sista?!

Grin and Bear it!

No this is not the title of my own porn production company. It is advice that I am giving and taking. My children unanimously feel like they are not fulfilling my expectations of them. Are they right? Are they wrong? This really is not the point. The point is 1. I must be hard on them. 2. They must feel like they HAVE to make me happy. 3. They need to learn that they HAVE to live their own lives in the way they see fit. 4. They must please themselves- not me!

I am probably too demanding of them. I know that I expect them to do their best every single day with whatever it is they are doing. I expect them to learn from mistakes and keep trying when they fail. These things are pretty much non-negotiable in life-for me. Now, does that mean it HAS to be non-negotiable for them? No. Does it mean if they have a plan that I don't agree with that they are not still wonderful people? Absolutely not! They all have to live for themselves.

Growing up is a difficult enough task without the burden of trying to please someone else all the time. I feel as if the idea that they feel they "aren't making me happy" Is sometimes a cop-out. I seen them make decisions that moms in general would not love-but don't really put a second thought into it-as it is something they WANT (ex. Spending too much money on frivolous things, drinking, dating people that are not good for them. You know your basic late teen/early 20's behavior) They supply this response when discussing life choices. I feel they take my questions meant to provoke conversation as being cross-examined or as a non UN sanction interrogation techinque. I recognize that I do at times come off as harsh or judgmental. But I certainly am not judging them. I had a difficult transition into adulthood and certainly do not consider myself better than they are. Balls, I was working on a divorce by the time I was my oldest child's age. I CERTAINLY am not the poster child for wise young adult choices.

However, I am still holding them accountable for the decisions and chioces they make. Does that mean that I am judging them? I don't think so. But there is merit to the feelings they have. Perhaps my abrupt tone or my desire to know all about their life should be curtailed as they are adults? This is a difficult transistion for all of us and maybe I am making it more difficult for them. I know it is coming from a good place, but maybe it is time for me to "grin and bear it" too?